Gluten Sensitivity, Autoimmune Disease and A Little Piece of My Journey

I want to share a few videos that really struck a chord with me because of my own personal journey through the land of autoimmune disease and undiagnosed gluten sensitivity.

*I am not a doctor or any other trained medical professional for that matter, so please keep that in mind. My blog is a personal blog and I am just a 36 year old mom who has celiac disease, dermatitis herpetiformis, Graves’ Disease and have also been diagnosed with a slew of other medical issues over the course of my life.  Because I did not exhibit the “classic” symptoms of celiac disease, none of my doctors ever thought to look beyond the scope of my symptoms to find the underlying cause.

I have undertaken a medical odyssey for answers and truth, wherever they may be found (of course when it comes to celiac disease, that always seems to be a moving target). 😉  I am just curious about my story, and how I managed to slip through the cracks for so long.  I thought I would share the information I am learning along the way, in the hopes that if any of this strikes a cord with someone who hasn’t been diagnosed with gluten sensitivity yet, that they might get tested.  I can’t imagine how different things could have been had I been diagnosed with gluten sensitivity BEFORE it turned into celiac disease.  The sooner one finds out that they are gluten sensitive, the better they will be in the long run.  One’s health is a heavy price to pay for food that may unknowingly be toxic to you.

There is more available information on gluten sensitivity today than there was even just a year ago.  I personally find the whole “spectrum of gluten sensitivity,” which includes celiac disease and dermatitis herpetiformis, to be utterly fascinating.  If you think you have an issue with gluten, but your tests for celiac disease come back “negative,” you may find some valuable information in what Dr. Petersen has to say.  The first video pertains to autoimmune disease (as a whole) and gluten sensitivity.

The following video is more specific to autoimmune thyroid disease and gluten sensitivity:

I was diagnosed with Graves’ Disease in 2004 and this was the upteenth diagnosis that I had received over a lifetime of unexplained medical oddities.  This diagnosis finally set me on the path to discovering my “hidden” celiac disease.  I was diagnosed with Graves’ Disease after a sore on my leg, would not heal.  My primary doctor initially suspected Type 2 Diabetes, because diabetics can have problems with wound healing.  After she ran a blood test (which came back negative for diabetes), she called me to say that my thyroid came back “high,” in fact, extremely high.  I had no idea what that meant at the time, so she referred me to an endocrinologist to check it out further.

The first tests “Dr. G” ran on me, to see what was going on with my thyroid, included (the “normal reference ranges” that I list, were for 2004):

  • Total T3 (my score: 221, with the normal reference range of 57 – 175).

According to WebMD, the Total T3 test is:

Triiodothyronine (T3). Most of the T3 in the blood is attached to thyroxine-binding globulin. Less than 1% of the T3 is unattached. A T3 blood test measures both bound and free triiodothyronine. T3 has a greater effect on the way the body uses energy than T4, even though T3 is normally present in smaller amounts than T4.

  • Anti-TPO-Ab (my score: 428 with the normal reference range of 0 – 34).

According to the Mayo Clinic:

TPO, an enzyme normally found in the thyroid gland, plays an important role in the production of thyroid hormones.  A thyroid peroxidase test detects antibodies against TPO in the blood.  The presence of thyroid peroxidase antibodies in your blood suggests that the cause of thyroid disease is due to an autoimmune disorder such as Hashimoto’s disease or Graves’ disease.  In autoimmune disorders, your immune system makes antibodies that mistakenly attack normal tissue.  Antibodies that attack the thyroid gland cause inflammation and impaired function of the thyroid.

  • Thyroid Stimulating Immunoglobulin (my score: 186, with the normal reference range of 0 – 129).

According to Johns Hopkins University:

Thyroid stimulating immunoglobulins, also known as TSIs, are autoantibodies that are produced by the immune system in the setting of Graves’ disease.

  • FT4 (my score: 1.5, with a normal reference range of 0.8 – 1.6).

According to WebMD:

Free thyroxine (FTI or FT4). Free thyroxine (T4) can be measured directly (FT4) or calculated as the free thyroxine index (FTI). The FTI tells how much free T4 is present compared to bound T4. The FTI can help tell if abnormal amounts of T4 are present because of abnormal amounts of thyroxine-binding globulin.

  • TSH (my score: 0.021, with a normal reference range of 0.4 – 4.5).

According to MedlinePlus:

TSH is a laboratory test that measures the amount of thyroid stimulating hormone (TSH) in your blood. TSH is produced by the pituitary gland and tells the thyroid gland to make and release the hormones thyroxine (T4) and triiodothyronine (T3).

*If you have ever been confused on the TSH test (it took me forever to understand why a “low” TSH number (like my 0.021) indicated a “high” thyroid (hyperactivity), click here for a great article explaining it!).

Apparently, my scores were “good” enough for Dr. G to diagnose me with Graves’ Disease!  All I can remember thinking to myself, as I sat in his office and heard the words “Graves’ Disease,” was oh no, my eyes are going to “bug out.” Seems silly to me now, but that was all I knew of the disease back then.  It was enough to reduce me to tears and ask what was the best way to make sure that didn’t happen .  I also wanted to know if I would ever be able to have another baby, and if so, what was the most efficient treatment to get me to that point as fast as possible.  Dr. G recommended Radioactive Iodine Ablation, so that’s what I did.

Over the next 10 months, after my thyroid “died” and I was put on a thyroid replacement hormone, my TSH levels began to soar, reaching an eventual high of around 150, despite being on a very high dose of Levoxyl and a T3 hormone, Cytomel.  It felt as though the life were being sucked right out of me.  I was extremely lethargic and put on a ridiculous amount of weight.  Add to that the fact that I was a relatively new mother at the time and still battling some postpartum “adjustments.”  It was utter hell to care for a baby when I barely had the energy to get out of bed, and I quickly found myself in the midst of a deep depression, and was promptly put on antidepressants.

Poor Dr. G., he was seeing me often back then (monthly), and had grown so accustomed to me showing up in tears (I was always assuming that I would get more bad news, like an even higher TSH level than the previous month…  I had self-diagnosed myself with “Pavlov’s Dog syndrome,” by this time. 😉 ), that he greeted me each time with a box of tissues!  Love that man, it makes all the difference in the world when you have a physician with a compassionate bedside manner.

It was Dr. G. who discovered my hidden celiac disease in April of 2005; after returning from a medical conference and learning “something” that apparently connected a few dots for him, as to why I was not absorbing my thyroid hormone medication.  He said he was going to test me for celiac disease.  I laughed at him.  A few years prior (I cannot recall the exact year, but I believe it was 2000), when I was still in my career as an event planner for a major hotel, I ironically detailed a celiac disease conference.  This was back when celiac disease was still thought to be a rare childhood disease, and I can clearly remember thinking to myself, “Whew…  I am in my mid-20’s, I do not suffer from stomach aches and diarrhea and I am not super skinny.  I am in the clear for celiac disease!”  Little did I know that I should have been one of the conference attendees.

The initial blood test that Dr. G ran on me was not the current “Celiac Panel,” that is outlined on The University of Maryland Center for Celiac Research website.  Those tests include the following:

  • Total IgA
  • AGA-IgG or Antigliadin IgG
  • AGA-IgA or Antigliadin IgA
  • tTG-IgA or tissue transglutaminase-IgA

Dr. G only tested me for the presence of Anti-Gliadin Antibodies, and the following results are from my April, 2005 blood test:

  • Gliadin IgG Ab (my score: 25.2, with a normal reference range of 0 – 29.9)
  • Gliadin IgA Ab (my score: 42.7, with a normal reference range of 0 – 29.9)

Based on those results alone, Dr. G gave me the diagnosis of celiac disease and did not recommend putting me through the intestinal biopsy to confirm it (although I ultimately had two intestinal biopsies and a skin biopsy before I came to terms with the truth.  I really struggled with the fact that I did not “feel sick”).

I had the celiac panel run again in September of 2009 (I get these occasionally to see “whats going on inside,” because I cannot tell when I have been “glutened”), and this time it was the current celiac panel that my doctor ordered.  The following were my results from just 8 months ago:

If you click on the photo, it will bring up a larger image.

  • Celiac tTG Ab IgA Out of Range, (my score: 37, with a normal reference range of 0 – 19)  Apparently, I had been unknowingly ingesting gluten, which only serves as further evidence (to me anyway), that just because you may not feel sick on the outside, does not mean your immune system is not reacting nonetheless!  You cannot “outgrow” celiac disease, once you have it, you have it.  Do not be fooled into thinking that if you eat gluten and do not feel sick, that you are suddenly cured, because that could not be further from the truth.

I hadn’t noticed the following statement on my blood work before, and am not sure if it is just my local lab that does this or not :

“The American Gastroenterology Association recommends that “In the primary care setting, the IgA tTG A is the most efficient single serologic test for the detection of celiac disease. Evidence indicates that the additional inclusion of IgG antigliadin antibody and IgA antigliadin is not warranted.”  Gastroenterology 2006: 131: 1977 – 1980

To identify patients with selective IgA deficiency, samples are screened using quantitative IgA, followed with tissue transglutaminase antibodies (tTGA).

Antigliadin antibodies may be performed if indicated.

So my question is this, if only 2 components of the panel are routinely tested; how many people (that would fall within the broader spectrum of gluten-sensitivity), are falling through the cracks??

I read this note on The University of Chicago Celiac Disease Center website:

Anti-gliadin antibodies (AGA-IgG and AGA-IgA) are no longer used to test for Celiac Disease due to a low level of accuracy in people who have not yet been diagnosed.

I suppose that makes sense if a physician is looking to diagnose celiac disease.  But here is another question, how long does it take for a person to be reacting to gluten, to produce villous atrophy?  I have dermatitis herpetiformis, which I am coming to realize I have had for a very long time. According to the Gluten Intolerance Group (bold emphasis added):

Dermatitis Herpetiformis (DH) is a chronic disease of the skin marked by groups of watery, itchy blisters. The ingestion of gluten (a protein contained in wheat, rye and barley) triggers an immune system response that deposits lgA antibodies under the top layer of skin. IgA antibodies are present in affected as well as unaffected skin. DH is a hereditary autoimmune disease linked with gluten intolerance. If you have DH and do not follow a gluten-free diet, you may develop the intestinal damage of celiac disease.  With DH, the primary lesion is on the skin rather than the small intestine. The degree of damage to the small intestine is often less severe or more patchy than for those with only celiac disease. Both diseases are permanent and symptoms/damage will occur after consuming gluten.

I do believe that might explain my lack of digestive complaint.

Dr. Petersen talks about testing for gluten sensitivity in the following video:

I really keyed in on what Dr. Petersen said about:

Endomysial and anti-tissue transglutaminase antibodies being more “apropro” for celiac disease because they are positive when there is already a tremendous amount of destruction in the small intestine.

That statement prompted me to look closer at Sam’s blood test,

Click on the photo for an enlarged view.

which indicated a positive result for tTG- IgA, with a score of 36 (normal reference range < 20).  Sam’s intestinal biopsy came back “negative.”  It makes me wonder if there was actually zero intestinal damage but rather if the biopsies that were taken, were simply from unaffected areas of his small intestine?

Regardless, I asked Sam’s pediatric GI what I should do.  Do I allow Sam to continue eating gluten until there is enough intestinal damage to produce a positive biopsy or do I spare him from the risk of other potential celiac related complications by putting him on the gluten-free diet immediately?

“Dr. N” pulled me aside and said, “If Sam were my son, I would put him on the gluten-free diet immediately.”

So that is exactly what I did.  I believe that my job, as his mother, is to get my son to adulthood as healthy as possible.  If he wants to challenge the diagnosis later in life, then that will be his choice to make as an adult.  My villous atrophy can heal on a strict gluten-free diet, but because of my many years of undiagnosed/untreated gluten sensitivity and the related complications I now have, will be with me for the rest of my life.  All which could have been avoided had I only been properly diagnosed as a child.

I just received a copy of the Spring, 2010 issue of Celiac Disease News, from the National Digestive Diseases Information Clearinghouse.  The very first article is titled, Research Highlights Importance of Biopsy Site for Diagnosing Celiac Disease in Children. The following is an excerpt from the article:

Researchers from the faculty of medicine at Dalhousie University in Halifax, Nova Scotia, Canada, published findings from a study suggesting that biopsy sample sites should include the duodenal bulb—the section of the duodenum immediately adjacent to the stomach. Over 2 years, Mohsin Rashid, M.D., associate professor of pediatrics, and medical student Andrea MacDonald examined biopsy samples obtained from the duodenal bulb and from sites in the second or more distal—farther along—sections of the duodenum in 35 celiac disease patients ranging in age from 17 months to 18 years. Thirty-one of these children had abnormal distal biopsies and all but two also had abnormal bulb biopsies. More significantly, four children with normal distal biopsies showed effects of celiac disease in bulb biopsies.

Diagnosis of celiac disease would not have been possible in these four cases with distal duodenal biopsies only,” Rashid wrote in an article that appeared in the October 2009 issue of BMC Gastroenterology. “The optimal strategy for detecting villous changes should include biopsies not only from the distal duodenum but also from the bulb to improve the diagnostic yield,” he concluded.

See what I meant about celiac disease being a “moving target?”

I don’t know about you, but I was always taught to trust that my doctors knew everything there was to know about current medicine.  If a doctor told me something was so, I believed them and followed their advice (well, up until I was handed my CD diagnosis, it took me a while on that one!).  Because really, how would I know otherwise?  I did not go to medical school.  Since being diagnosed with CD, I have become hyper-aware of how many physicians are not up-to-date on current celiac disease research, including non-celiac gluten-sensitivity.  Just since my own diagnosis, I can cite 3 examples of inaccurate information being transmitted from a doctor to a patient (not intentionally):

1. When my mom asked her doctor to test her for celiac disease, he asked her if she had diarrhea.  When she responded “no,” he told her that she could not possibly have it, so it was pointless to test her.  My mom had to convince him to give her the blood test by mentioning that her daughter had it (her test was negative 4 years ago).

2. When I initially had Sam screened for CD at the age of 3, his tTG test came back within the normal range.  I asked Sam’s pediatrician when I should have him tested again and he told me that he would never have to be tested again because “he would never get it.”  I walked away from that appointment rather confused, because I had read otherwise.  After a little convincing,  he agreed to test Sam again at age 5 and this time his tTG test was positive.  It was neat though, after a lengthy conversation with “Dr. C,” he told me it was a valuable learning experience for him because it demonstrated that what he had learned in medical school was outdated.

3. My mom-in-law, who has Hashimoto’s Thyroiditis, asked her GI to test her for celiac disease (who also happens to be my GI).  When the test came back negative, she mentioned to our doctor that she had felt better when trialing the gluten-free diet (after she took the blood test), and if that meant she could have non-celiac gluten sensitivity?  “Dr. P” said there was no such thing as non-celiac gluten sensitivity because “gluten sensitivity = celiac disease” and her blood test was negative for CD, so her feeling better was only “in her head.”

Have you had any similar experiences?  If so, I would love to hear your story.


Blue Horizon Fish and Chip Bites, a Gluten-Free Vinegar Odyssey and Valuable Lessons Relearned

I have been sitting on this post for about a month now (researching one thing has led to another and yet another), so some of the information in this post is a bit outdated (the ingredients and labeling of the Blue Horizon GF Fish & Chip Bites have been changed since I first bought them). What started out as a simple post to help other gluten-free advocates “clear up the confusion” over the labeling of this product, has turned out to be a GREAT gluten-free learning experience for me, and I have been trying to navigate this lifestyle for 5 years now. Which only further proves to me that no one person knows everything, and living gluten-free safely and happily is a collective effort, at least until the FDA officially defines the term “gluten-free.” Hopefully you will find some useful information in this post too. So grab a cup of coffee and sit down, this is definitely one of my longer posts, LOL! 😀 If you are in a rush or already know about the labeling confusion regarding the Blue Horizon Seafood Bites, be sure to check out the last part of this post on Heinz Apple Cider Vinegar.

Several months ago while on a shopping trip to Whole Foods, I bought some Blue Horizon Fish and Chip Bites that were clearly marked gluten-free on the front of the package. I will be honest and admit that I purchased them based on that gluten-free label alone (it happens sometimes), and I didn’t read the ingredient label on the back before buying them. When I got home, I promptly tucked them into my deep freezer and forgot about them (I do that all the time too). Anyway, back in March, I was in need of a quick meal for the boys one afternoon, so I pulled out the Fish and Chip Bites, placed them on a cookie sheet and into the oven the went. I am really thankful for having started to photograph the ingredient labels to share on my blog, because it was then that I first read the ingredient label (I don’t recommend doing that!). 😀

I’ll admit this too, I automatically thought the same thing that many other gluten-free people thought… uh-oh! But before I acted impulsively and made a blog post about it, I Googled the Blue Horizon Fish and Chip Bites and came across many forums already discussing the topic, like this one on (I encourage you to read this message board thread, because it gives you a great idea of how frustrated and confused other celiacs can become over what we thought was a black/white issue suddenly becoming very gray).

The confusion and alarm makes sense due to the fact that we are often taught to avoid Malt Vinegar on the gluten-free diet, because it is usually made from barley (although it can also be made from corn, but neither barley or corn are one of the top 8 allergens that the FDA requires to be listed on an ingredient label), AND Malt Vinegar is not distilled (or so I thought, until I read this article (you really should read this link too, Jen Cafferty does a great job demystifying the malt vinegar confusion).

I am going to go even further into vinegars in a minute, but will tie up the Blue Horizon Fish and Chip Bites first. I contacted Blue Horizon and they were very gracious and explained the vinegar source and even included the lab test results showing that no gluten was detected in the products! That was really cool, if you ask me and I will buy their products again because of it.

Good Morning Heidi,

Thank you for contacting us with your question on the Blue Horizon Fish
& Chip Bites.

We use distilled malt vinegar which has no gluten in it. I have attached
the report form an independent laboratory showing this product is
gluten-free. Also we have changed this ingredient from the original
formula and are now using apple cider vinegar.

If you can respond with your address I can send you some $1off coupons
so you may try these gluten-free products.

Thank you again for taking the time to contact us.

Kind Regards,

Here are the Lab Test Results for Blue Horizon Gluten-Free Seafood Bites:

Tiffany Janes, another great advocate for the celiac community, wrote an insightful article on the Blue Horizon Seafood Bites and you can read that here. I also encourage reading that article because Tiffany touched on some things that I think every gluten-free person needs to consider more often.

So on to the vinegar odyssey I have been on!

Did you know that there was a distilled malt vinegar? I sure didn’t! I actually got excited about it, thinking I needed to score some so I could have “real” fish and chips again (I have been using Red Wine Vinegar as my Malt Vinegar substitute since going gluten-free, it’s actually pretty good!).

So what is Distilled Malt Vinegar?

According to this website, distilled malt vinegar is:

This is a clear, white vinegar, also known as spirit vinegar, made by distilling ordinary malt vinegar to produce a very strong, colourless liquid high in acetic acid. It is less pungent than malt vinegar.
Uses: In home-made pickles, and especially where the colour of the food needs to be retained for example, pickled pears.

So, I had to see what my GF pals on Twitter thought and if anyone knew where I could find distilled malt vinegar. One response I received was from a pal in Ireland, where it is quite common, he even sent me a photo of an Irish Distilled Malt Vinegar (seriously, how cool is that?). To make a long story short, after quite a bit of chatter on the gluten-free status of the different types of vinegar from various parts of the world, and a bit of confusion after I wasn’t overly clear on another question I had asked (something as simple as another person thinking I had made a statement of fact because they did not see the ? after something I wrote). It was an innocent oversight but it took off like wildfire! Remember playing the “telephone” game as a child?

I realized just how easy it is to add more confusion (even if it is unintentional) to the swirling whirlpool of misinformation flowing in the gluten-free community. 😉 I highly recommend reading a GREAT article titled “The Gluten-Free Rumor Mill” by Tiffany Jakubowski (make note of when Tiffany talks about similar products by the same company but in different countries) Whether you are new to the GF lifestyle or have been doing it for many years, it is useful “continuing education.”

Anyway, I now realize that much of the confusion caused by my Twitter bomb could have been avoided if I had paid closer attention to some information on the Heinz website (see below… I told you this was a vinegar odyssey, right?).  And this just speaks to the greater problem that I think many of us face on a daily basis: how many products have we become so comfortable with that we just drop them in our shopping cart week after week without realizing that we haven’t “checked” on them for a few years?  How many products have similar sounding names but different formulations that we don’t even think to check the label for that extra word or two that signals the difference?

From the Heinz Website:

Are Heinz® Vinegars gluten-free?

Heinz® Distilled White Vinegar is sourced from corn, not from wheat, rye, barley, or oats. Wine Vinegar and Apple Cider Vinegar are sourced from grapes and apples, respectively, not grains. Therefore, they would all be appropriate for gluten-sensitive individuals. However, Heinz® Apple Cider FLAVORED Vinegar is NOT gluten free.

Ah, yes. I had completely forgotten about the Heinz Apple Cider FLAVORED Vinegar! I cannot recall ever seeing it at the store, and I buy my vinegar in bulk at Costco anyway, so I do not even use Heinz to stay acquainted with the products.

So, I probed deeper into the Heinz Website, looking for more information on the Apple Cider FLAVORED vinegar. I visited their products page and found nothing about the flavored vinegar. I did a Google Image search looking for a picture of the label… nothing. I eventually ended up on their foodservice site, Club Heinz (scroll down to the Products section, then a little further down to the subcategory “Bulk Vinegar,” and that is where I saw it, still no picture though)!

I started to relax thinking this was just a commercial foodservice product (that lasted a millisecond before I thought.. oh no, how many restaurants/manufacturers use this product, unknowingly? So, I sent an email to Heinz and the following is what transpired:

March 22, 2010

Dear Heidi,

Thank you for contacting us to find out where you can purchase Heinz Apple Cider Flavored Vinegar. This vinegar is distilled white vinegar with an apple flavoring. The other kind is the Apple Cider Vinegar that is made from apples. Both are gluten free. The labels will be on the bottles and if you have any additional questions please feel free to contact us.

If the above stores (I omitted these to save on space) are not close to your area or the item is out of stock, we suggest that you speak with your store manager.

While we would like to be able to offer you the option to purchase this item directly from our company, we unfortunately are not set up for direct sales to consumers at this time.

Thank you again for your interest and continued patronage.  We hope that you will soon have a convenient source for all the products that you enjoy.

Heinz Consumer Resource Center

When contacting us, please refer to the following reference number: 003159252A


PS – We love hearing from Heinz® Ketchup fans. So we’ve created a place on Facebook where Heinz® Ketchup lovers can share thoughts, ideas and stories. Stop over and fan us. You’ll find recipes, videos, info, and have a chance to chat with your fellow Heinz® Ketchup aficionados. Plus you’ll be among the very first to get the latest news from Heinz® Ketchup.  Join us at:

Okay, did I read that first paragraph right? Did the Heinz representative say that BOTH the regular Heinz Apple Cider Vinegar and the Apple Cider FLAVORED Vinegar ARE gluten-free? Does the Heinz website not say the exact opposite?? Hmmm.. so, I had to send an email back to them for clarification (I have been known to read things wrong before!):

You are saying that the Heinz Apple FLAVORED Vinegar IS gluten-free?

Then why does your website list it as NOT gluten-free? (Last question on the page)

Just want to make sure I have it correct before making a post on my blog. 🙂

Thank you kindly,

Heidi Kelly

Response back:

March 23, 2010

Dear Heidi,

Thank you for your interest in Heinz Products. We certainly understand how difficult it can be to find foods that meet the requirements of a restricted diet.

As you requested, the following is a listing of all of our products that do NOT have gluten containing ingredients. If the product you asked about is not on this list, then it may contain gluten containing ingredients.  Also, please note that recipes can change without notice.  Therefore, we recommend you always check the ingredient statement on the label.

Heinz BBQ Sauces  (Original, Chicken & Rib, Garlic, Honey Garlic Only)
Heinz Chili Sauce (All Varieties)
Heinz Cocktail Sauce (All Varieties)
Heinz Horseradish Sauce
Heinz Ketchup
Heinz Organic Ketchup
Heinz Reduced Sugar Ketchup
Heinz No-Sodium Added Ketchup
Heinz Hot Ketchup
Heinz Mustard   (All Varieties)
Heinz Pickles  (All Varieties)
Heinz Peppers  (All Varieties)
Heinz Relish  (All Varieties)
Heinz Sloppy Joe Sauce
Heinz Tartar Sauce
Heinz Traditional Steak Sauce
Heinz Worcestershire Sauce
Heinz Vegetarian Beans
Heinz Distilled White Vinegar
Heinz Red Wine Vinegar
***Heinz Apple Cider Vinegar
***Heinz Apple Cider Flavored Vinegar

Heinz Red Wine Vinegar
Heinz Garlic Wine Vinegar

Jack Daniel’s BBQ Sauces  (Original #7, Honey Smokehouse, Hickory Brown Sugar, Spicy BBQ Only)
Jack Daniel’s EZ Marinader — Teriyaki, Garlic & Herb, Steakhouse
Jack Daniel’s Steak Sauce (Both Varieties)
Lea & Perrins White Wine Marinade
Lea & Perrins Worcestershire Sauce (All Varieties)
Lea & Perrins Traditional Steak Sauce
TGI Fridays Salsa  (All Varieties)

Classico Red Sauces  (All Varieties)
Classico Alfredo Sauces (All Varieties)
Classico Pesto Sauces  (All Varieties)
Classico Bruschetta (All Varieties)

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1312000828         Ore-Ida® Shoestrings® (28 oz.)
1312000833         Ore-Ida® Country Style Hashbrowns (30 oz.)
1312000862         Ore-Ida® Country Style Hashbrowns (6 lb.)
1312001036         Ore-Ida® Crispers® (20 oz.)
1312001176         Ore-Ida® Waffle Fries® (22 oz.)
1312001260         Ore-Ida® Extra Crispy Crinkle Cut (26 oz.)
1312001280         Ore-Ida® Extra Crispy Seasoned Crinkle Cut® (26 oz.)
1312001417         Ore-Ida® Extra Crispy Fast Food Fries (26 oz.)
1312001461         Ore-Ida® Country Fries  (30 oz.)
1312001492         Ore-Ida® Fast Food Fries (4 lb.)
1312008564         Ore-Ida® Golden Crinkles® (8 lb.)
1312008565         Ore-Ida® Golden Fries (8 lb.)
1312008572         Ore-Ida® Golden Crinkles® (8 lb.)  CLUB
1312001320         Ore-Ida® Sweet Potato Fries
1312001330         Ore-Ida® Sweet Potato Fries

2580002011         Smart Ones Broccoli & Cheddar Potatoes
2580002247         Smart Ones Lemon Herb Chicken Piccata
2580002254         Smart Ones Fiesta Chicken
2580002360         Smart Ones Santa Fe Rice & Beans
2580002918         Smart Ones Chicken Santa Fe
2580002931         Smart Ones Cranberry Turkey Medallions
2580002290         Smart Ones Honey Dijon Chicken

Again, we appreciate you taking the time to contact us.   If you need further information, feel free to call us at this toll-free number (1-800-255-5750).  Our offices are open Monday through Friday from 8:30 AM until 6:00 PM, Eastern Time.

Heinz Consumer Resource Center

Huh! I love how they did not address the issue that there is conflicting information on their website! It was probably an “auto-reply!” 😉

So, one day while shopping at my local Smith’s, I saw the elusive Heinz Apple Cider FLAVORED Vinegar (so yes, it is in some grocery stores) and bought it, as well as a bottle of the regular apple cider vinegar so I could take photos of the labels for you!

If you are not looking closely at the label, would you think these products are the same, just in different sized containers?

A closer look:

And closer still:

Is it just me, or do these two labels look very similar?? At least similar enough that you might not catch the distinction?

The two Ingredient Labels:

Ingredient label for the Apple Cider FLAVORED Vinegar

The ingredient label for the Regular Apple Cider Vinegar

Talk about a paradox!

Now, knowing what I know about the distillation process (by Megan Tichy) and the gluten-free status of caramel coloring, (Nancy Lapid is another great source of information for the celiac community). I would personally lean towards the fact that the Apple Cider FLAVORED Vinegar is probably indeed “gluten-free,” but should I take the risk?

This little “adventure” has really got me thinking about the products I buy for me and my gluten-free family. Several months ago, I had the pleasure of speaking with Mary Schluckebier, Executive Director of the Celiac Sprue Association. We were originally discussing McDonald’s french fries and whether or not they are in fact “gluten-free,” (I will leave that one alone 😀 ) and she said something that has really resonated with me over the past several months. In a nutshell, Mary planted the following seeds in my head:

  • As celiacs, our heath is a matter of personal responsibility.
  • It all comes down to personal RISK, as to the products we choose to buy and consume. Reducing risk when possible should always be our main priority.
  • We all need to learn to “ask the next question.”
  • The term “Gluten-Free” does not necessarily mean “free of gluten.”

Here are few things I have been pondering over the past several months as a result of those “seeds” (these are just my personal thoughts):

  • So if one eats 10 products a day that have been tested to be under the 20 ppm limit, but still registers some level of gluten, does that have a cumulative effect?
  • If a product is tested to contain, say 6 ppm of gluten, is that per serving or the entire package?
  • If it’s per serving, and you eat the entire thing and it is technically 4 servings (how many folks actually eat a true serving size?), would that not be equal to eating something that contains 24 ppm of gluten? What is the daily maximum threshold of gluten consumption for someone with celiac disease?

I cannot seem to find any concrete answers to those questions (and yes, I do realize that I may be the only “wackadoodle” that thinks of these things!). But I have celiac disease and dermatitis herpetiformis and my son has celiac disease too. I want us to LIVE a healthy, happy and long life if possible, and in order to do that, I need to know what I am eating (have you seen Food, Inc. yet? 😀 )

On that note, I want to recommend a video on the University of Chicago Celiac Disease Center website, that I really encourage folks to watch. I cry each time I hear the kiddos talk, I feel the pain of the parents and am inspired to do whatever I can to help spread awareness. While you’re there, if you can spare a buck or two, please consider donating to the University of Chicago Celiac Disease Center.

Zevia All-Natural Diet Soda Review, with some added “food for thought”

I have found myself with a bit of spring fever lately and cannot seem to get myself back in the kitchen. Although I haven’t been outside as much as I would like because the New Mexico winds can be rather ferocious in the spring time! I have lived here for 12 years, and I still cannot get over the tumbling tumbleweeds that blow everywhere, they get stuck underneath my car, I get piles of them in my backyard, I even have to run away from them when I am out for my daily walk… crazy!  I saw this picture on Google Images and had to share it, it’s funny but so true!

Anyway, Sam, Luke and I were out and about yesterday afternoon and we stopped by one of my favorite places to buy gluten-free products, R. Downs Nutrition Center. Mike was out of town on a business trip so I decided we would do something different for dinner, to make it fun for the boys because they were missing their dad (he really is like a 3rd child when it comes to playtime) and so I didn’t have to do any dishes!. We splurged on some gluten-free packaged foods for dinner (will be doing reviews of those soon), and I “kicked it up a notch” by trying a new product (new to us anyway), Zevia All Natural Diet Sodas. I can’t say I was optimistic about this, as I have tried many “Natural Sodas” over the years, while trying to kick my nasty Diet Coke/Diet Pepsi habit, but my curiosity got the best of me.

I didn’t start drinking diet soda because I wanted to lose weight, but my dad has battled Type-2 Diabetes for years and when I was growing up, if there was soda in the house, it was diet soda. I developed an affinity for that artificial taste at an early age. I was never a big plain water drinker as a teen/young adult (although I am now… is it just me or does your craving for water only increase the more you drink??), I guess I thought it was too boring. 😀 Because of my own experience, my kids drink mostly water, milk or I allow them a juice in their lunch box (no more than one a day). I want better for them and I know that if you start kids young enough eating and drinking healthfully (and naturally), that is what they will prefer, at least in the long run.

My diet soda consumption only increased as I aged, especially after I started developing more serious health problems. I put on some serious poundage after my thyroid was ablated (Graves’ Disease) but before my “hidden” Celiac Disease and Dermatitis Herpetiformis were discovered. No joke, I was essentially without a thyroid for over 6 months, my TSH levels were in the 150’s at one point! I was probably putting on 2 – 4 lbs a week, despite being on Weight Watchers, drinking 4- 5 diet sodas a day (needed the caffeine for energy because I was so lethargic from the severe hypothyroidism) and exercising like a mad woman (when my energy levels were up enough to do so, which is why I drank so much diet soda and coffee). Looking back in hindsight, I believe I was only contributing to my weight gain by drinking so much diet soda! It was a vicious cycle. Check out this article on one of my favorite new blogs: Fooducate, I HIGHLY recommend subscribing to it, they do a great job helping to break down the complexity of processed food ingredients! Here is another one from Fooducate: Phosphoric Acid.

Anyway, after my brilliant endocrinologist (you need to scroll down a bit on the page I linked to, for a great article on endocrinological disorders and celiac disease), returned from a medical conference (after being at his wits end as to why I was not absorbing my thyroid replacement hormone) and gave me the blood test for celiac disease. That was in 2005, when it was exceptionally unusual for doctors, especially non-GI doctors, to do a random blood test on someone without the classic GI symptoms of celiac disease. I really do love that man, well, after 2 years of therapy I do, because before that, I cursed his name for handing me that diagnosis! 😀

Anyway, on to my review (Warning: this has turned into more than a simple review for me. I apologize in advance for my tangent 😀 ).

I have tried many natural soda alternatives over the years, including Oogave but it wasn’t close enough to what I craved to work for me. Oogave soda still has 17 grams of sugar, regardless of the fact that it is lower on the Glycemic Index, it is still sugar and diabetics especially, need to watch their sugar intake. I eventually gave up hope for finding something that would fill that diet soda void and after many fits and starts, I decided to suck it up and go a completely different route. Sparkling water with lemon or lime juice. It took a while to adjust to it, but now it is my beverage of choice when I want something bubbly. However, a cold, crisp sugar-free soda would be a really nice occasional treat (especially with some popcorn!). Zevia fills that void for me. I also think this soda would be helpful if one is trying to wean off of mainstream diet sodas (hopefully on the journey to drinking more WATER!). I am excited to see what my dad thinks of these.

First, a little bit about Zevia All-Natural Diet Sodas:

Based in Seattle, Washington, Zevia LLC is the creator of the world’s first all natural zero calorie soda: Zevia® Natural Diet Soda. Zevia® is branded Nature’s Answer To Diet Soda™ for one reason: the ingredients. Zevia® contains none of the chemically processed artificial sugar substitutes found in other diet sodas because Zevia® is sweetened with stevia. Other diet sodas also contain artificial flavors and colors. Zevia® does not. All seven delicious Zevia® varieties – Zevia® Natural Cola, Zevia® Natural Orange, Zevia® Natural Twist , Zevia® Natural Root Beer , Zevia® Natural Black Cherry , and Zevia® Natural Ginger Ale – are healthier and taste better than regular diet soda. Click here to read about the passionate and inspired history and people behind Zevia®, the world’s only truly all natural zero calorie soda. Click here to meet the management team at Zevia LLC.

I want to re-post something from the Zevia Website, that I found really interesting and wanted to see what others thought, my emphasis is added in bold, red type (remember my warning)!

Because stevia has no effect on blood sugar levels, it is attractive as a natural sweetener to people who must control their intake of certain carbohydrates. But, in 1991, responding to an anonymous complaint, the United States Food and Drug Administration labeled stevia as an “unsafe food additive” and restricted its import. Many believe the complaint came from Monsanto, owner of Nutrasweet® artificial sweetener. Stevia was later approved for use as a dietary supplement but not as a food additive. >Learn More. That meant we could offer ZEVIA, but we could not call it a “soda”. From January, 2007 until February, 2009, ZEVIA was labeled as a “carbonated stevia supplement”, consistent with the FDA requirements.

**Is it just me or do you suddenly find yourself hearing a lot about Monsanto these days? The above information re: Nutrasweet® may be common knowledge to a lot of people, but I only recently heard about Monsanto for the first time, after watching Food, Inc! I am amazed by all the products or political figures that seem to have a Monsanto connection. If you have not seen Food, Inc. yet, PBS will be airing the film on Wednesday, April 21, 2010, and I cannot recommend this film enough!!

I am still just completely dumbfounded and disturbed by what I viewed on Food, Inc. (as well as other food documentaries). I am just seeking the truth about the food I put into my mouth, not only for maintaining my disease, but for the overall health of my family. I just want the facts so I can decide what I want to buy or not buy. I have tried to have an open mind with both sides of the issue, but what I cannot get past, is that IF biotech food products are completely “safe” then WHY isn’t there a label on the product that tells me, that what I am about to purchase and consume, is not really what I think it is?

According to, here is the reason:

Myth: Biotech crops increase food allergies.
Fact: There is no evidence that biotech crops increase food allergies; in fact, researchers are working to develop biotech foods that are free of known allergens, such as peanuts. In fact, according to the FDA’s labeling policy, biotech foods are required to be labeled if the product is significantly changed nutritionally or uses material from a potential allergen. Today, the majority of biotech products in the marketplace are not labeled since they are not derived from known allergens.

Okay, so what does that mean? The top 8 known allergens or ALL known allergens?

And what about this in regards to the Increasing Prevalence of Celiac Disease?

I am not a conspiracy theorist by any means, but I do have to say that the connections that have been made between Monsanto and certain US government employees, definitely raise my eyebrows. If you are interested, click here for more on Monsanto (Wikipedia article). Click here for Monsanto’s statement regarding the claims made in the film Food, Inc.

What are your thoughts on this issue??

I always worry about posting things like this because one, I do not want to come off as a person “on the fringe,” because I am not, and I usually just “tune out” people that I think are extreme. Second, I don’t have any real answers because I do not know what the “truth” is. I just hope to encourage people “to ask the next question.” Our health and well-being is a matter of personal responsibility, but it is difficult to make the best decisions for ourselves when there is so much hidden, incorrect or conflicting information out there.**

There really is no “quick post” with me, is there? LOL! 😉 Moving along…

About Stevia

Stevia is an herb in the sunflower family, native to subtropical and tropical South America and Central America. For centuries, the Guarani Native Americans of Paraguay and Brazil used stevia as a sweetener in native foods and medicinal teas. The extract from the stevia leaf has no calories, no effect on blood sugar levels, and is hundreds of times sweeter than sugar.

Stevia Has Other Health Benefits

Research published in the Journal of Agricultural and Food Chemistry concludes that stevia could also be a rich source of antioxidants and may protect against DNA damage and cancer. <click here for an abstract of the research.>

Stevia also has shown promise in medical research on high blood pressure <Research Link #1> , inflamation <Research Link #2> , insulin efficiency <Research Link #3> , cellular immuntiy and nutrition <Research Link #4> , and healthy cell growth <Research Link #5>.

Purdue University’s Dental Science Research Group concluded after two studies that stevia “significantly” inhibits the development of plaque and may help to prevent cavities.

Here is another article that is just plain educational on how the food industry works. The article is on artificial sweeteners, including Splenda and it also mentions Stevia. Some of the information is outdated as the article is from 2007.

As for how Zevia All-Natural Diet Sodas taste? While the Cola is not exactly like Diet Coke or Diet Pepsi, I think it is really darned close!!! The Ginger Root Beer and Orange flavors were our favorites. The Twist was good too, but it has a much more pronounced lemon lime flavor than say Diet 7-Up or Diet Sprite, and I presume that is because the lemon lime flavor is derived from lemon and lime oils, which are more pronounced (if you have ever used oil flavorings in baked goods, instead of extracts, you will know what I mean). Mike thought it tasted like the “old” Gatorade, only carbonated. Mike is excited to try the Dr. Zevia if I can find some. There is also Black Cherry and Ginger Ale, which we haven’t tried yet.

Have you tried Zevia All-Natural Diet Sodas yet? If so, what did you think of them?